The Communication Matrix is a free assessment tool that helps families and educators see how an individual is communicating and then helps determine realistic communication goals for the future. Click on Assessment and then on Families at the website. https://communicationmatrix.org/
The National Center on Deaf-Blindness has a section specifically for parents called Family Engagement. This section has loads of information for families along with a special section called Families Matter Stories, where families have recorded videos about their experiences. https://nationaldb.org/groups/page/10/family-engagement
The National Family Association for Deaf-Blind website is dedicated to serving and supporting families who have children who are deaf-blind. There are parent training resources, national conferences, archived podcasts, peer-to-peer connections, and family leadership information. https://nfadb.org/
The national CHARGE Syndrome Foundation has information specifically about children who are deaf-blind due to CHARGE. The For Families section describes information on conferences and trainings, family support groups, and grief support. https://www.chargesyndrome.org/
Family Voices of North Dakota (FVND) is a statewide organization focused on supporting families of children with special health care and/or disabilities. FVND connects families to education, training, leadership opportunities and to other families. http://fvnd.org/site/
The North Dakota School for the Deaf – Resource Center for Deaf and Hard of Hearing can provide educational opportunities, information, resources and outreach by trained experts in deafness/hard of hearing. Be sure to visit their Resources/Links section! https://www.nd.gov/ndsd/
The North Dakota Vision Services/School for the Blind is a great in-state resource for vision information. Be sure to visit the Family Programs and the Resources sections. https://www.ndvisionservices.com/
North Dakota Hands and Voices is a parent-driven organization focused on providing information and support to families of children with hearing loss regardless of communication mode. It provides outreach activities, parent professional collaboration activities, and advocacy events. http://www.ndhandsandvoices.org/
ND Hands & Voices: Guide By Your Side (GBYS) initial training, April 12, 2019 in Minot ND. Click here for more information.
Family Voices of North Dakota - 2019 Parent Leadership Institute, June 7-9, 2019 in Edgeley, ND. Call for applicants. Deadline May 1, 2019. Click here for more information.